This assessed whether the directors deemed the Pandemic Intake questionnaire helpful in the care of patients during the pandemic, and how they addressed COVID-related concerns. Questions used a three point Likert-like scale and guardians indicated if they agreed with the item statement (yes), were not sure (unsure), or disagreed with the statement (no). Our inpatient hospital continues to serve patients and is working hard to ensure the continued safety of our patients, families and staff members. Kennedy Krieger Institute Receives Nearly $1 Million Grant to Expand Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact. Program directors worked to address these concerns and there was a significant decrease in the number of respondents unable to access surgeries in the later months of the pandemic (September to December). DOH launched the DOH COVID-19 emergency hotlines 02-894-COVID (02-894-26843) and 1555 in partnership with the National Emergency Hotline of the Department of Interior and Local Government (DILG), and PLDT and its wireless subsidiary Smart Communications Inc. Callers can ask questions if they suspect they are . This study has important limitations. Conclusion: This quality improvement project successfully implemented a pre-visit questionnaire to quickly assess areas of impact of COVID-19 on patients with neurodevelopmental disorders. Limitations in social interaction impacted the quality of life, and worsening behavior from patients at the Center for Autism and Related Disorders (CARD). AC, ML, TZ, PV, HB, CM, BC, EL, MR, DM, and PL contributed to conception and design of the study. The complex, inter-related factors, unique to patients with neurodevelopmental disorders influence the impact of the COVID-19 pandemic. . The impact of telehealth implementation on underserved populations and no-show rates by medical specialty during the COVID-19 pandemic. Telerehabilitation in the age of COVID-19: an opportunity for learning health system research. doi: 10.1182/bloodadvances.2021004288. doi: 10.1089/tmj.2020.0525, 8. (2021) 11(3):e045343. This poses an issue for patients struggling to access telehealth services (6), specifically patients from underserved populations (7). Pages - HealthChoice COVID-19 Gift Card Program Clinicians viewed the completed questionnaire before or during the visit and addressed COVID-related concerns during the appointment. Twenty percent of guardians of CDL patients reported a worsening of behavior, while guardians of CARD patients (33%) were 2.05 times more likely to report worsening behavior, and respondents from the Spinal Cord clinic (3%) were 0.12 times less likely to report worsening behavior. Be 12+ years of age. Eight months after getting COVID-19, 15-year-old Chloe Devore is still working to get back to her normal self. Race, age, and clinic type were significant predictors; sex was not. 1800 425 0111 (Toll-Free) +91-9700799993: West Bengal Coronavirus Helpline Numbers. HHS Vulnerability Disclosure, Help How has Kennedy Krieger responded to the COVID-19 outbreak? Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact. The East Baltimore institution received $1 million through the . SWS, sturge weber syndrome; CARD, center for autism and related disorders; other, metabolism, epigenetics, sickle cell clinic. Impact of COVID-19 pandemic on mental health in the general population: a systematic review, Behavioral implications of the COVID-19 process for autism Spectrum disorder, and Individuals comprehension of and reactions to the pandemic conditions, Changes in sleep patterns and disorders in children and adolescents with attention deficit hyperactivity disorders and autism spectrum disorders during the COVID-19 lockdown, Creative Commons Attribution License (CC BY), https://www.frontiersin.org/articles/10.3389/fresc.2022.934558/full#supplementary-material, Center for Autism and Related Disorders (CARD), Center for Development and Learning (CDL), International Center for Spinal Cord Injury (ICSCI), Other (Epigenetics, Sickle Cell, Metabolism), International Clinic of Spinal Cord Injury, Prepared me to address issues that might not have come up during the virtual visit. Providers responded by making more in-person and virtual appointments available to increase access. By clicking Accept, you consent to the use of ALL the cookies. Providers also worked to make more in-person (50%) and virtual therapies available (50%), and provided clinical equipment for patients without access (50%) (Figure2). Program directors worked to address these concerns and there was a significant decrease in the number of respondents unable to access surgeries in the later months of the pandemic (September to December). Race and clinic type were dummy coded, with the largest groups (White children and the Center for Development and Learning, respectively), as the reference groups against which all other groups were compared. Continue to practice everyday preventive actions now: Kennedy Krieger Institute scheduled events happening at Kennedy Krieger, or in other locations, may be impacted by changes to the public health environment. For patients at the Kennedy Krieger Institute, clinical care requires access to physical, occupational and speech therapy. We hypothesized that clinicians providing medical care during the pandemic would be assisted by this information. Providers increased availability of in-person and virtual therapies and visits and made referrals for additional care to address this. Mucalo L, Brandow AM, Dasgupta M, Mason SF, Simpson PM, Singh A, et al. Returning the questionnaire was voluntary and not required for the visit. Clinicians initiated the use of a questionnaire to ask guardians about COVID-19 related concerns prior to clinical visits. "It was like very comprehensive, a lot . Responses to the provider feedback survey (see Supplementary Appendix B for survey) were organized in an Excel database. The impact of the novel coronavirus disease 2019 on therapy service delivery for children with disabilities. The Neurology clinic sees patients diagnosed with brain injury, leukodystrophies, Rett syndrome, stroke and epilepsy. "We have a program that reaches out to school nursing so and provides that education so that there can be that bridge between parents kids and the school," said Rybczynski. For the patients, families, students and staff of Kennedy Krieger Institute. *Correspondence: Anne M. Comi comi@kennedykrieger.org, These authors have contributed equally to this work and share senior authorship, Specialty Section: This article was submitted to Disability, Rehabilitation, and Inclusion, a section of the journal Frontiers in Rehabilitation Sciences, Women in Science: Disability, Rehabilitation, and Inclusion, View all To find out about more about your symptoms, check out the healthdirect Australia COVID-19 Symptom and Antiviral Eligibility Checker. Kennedy Says Kushner Virus Task Force Asked Him to Distort - Insider 6 a.m. to 6 p.m. Tuesday through Sunday, and observed state holidays. Out of all respondents, 2.9% reported that their child had asthma/other lung disease and 0.2% reported their child having heart disease at the time of completing the questionnaire. This project included 10 clinical programs, led by seven clinician program leaders, including the Center for Development and Learning (CDL), the Center for Autism and Related Disorders (CARD), Tourette's syndrome clinic, Neurogenetics, Neurology, Metabolism clinic, Epigenetics, Sturge-Weber syndrome clinic, Sickle Cell disease clinic, and the Center for Spinal Cord Injury. It includes checklists, resources, and a case study that state and local health departments, event . Free text boxes were included to allow the taker to expand on their concerns. The statistical model was significant and correctly categorized 96% of patients, 2 (14, N=1,644)=43.7, p<0.001). Patients with spinal cord injuries (10), sickle cell disease (11), developmental (12), and neurological (8) conditions are reported to be at increased risk of COVID-19 infection. View more interviews in the video archive. Responses on the Pandemic intake questionnaire were dichotomized; for example Do you consider the patient to be at increased risk for COVID-19 related complications?, yes and unsure responses were coded as an affirmative response and no was coded as a negative response. Impact of COVID-19 pandemic on utilisation of healthcare services: a systematic review. (2020) 13(3):100942. doi: 10.1016/j.dhjo.2020.100942, PubMed Abstract | CrossRef Full Text | Google Scholar, 2. Today, COVID-19 immunity protection is higher due to both vaccinations . Clinicians initiated the use of a questionnaire to ask guardians about COVID-19 related concerns prior to clinical visits. 6 a.m. to 10 p.m. Monday. West Health Institute and Johns Hopkins University School of Medicine (2020). In this section you will find information and advice from our medical and public health experts designed to protect the health and wellbeing of all South Australians and help stop the spread of COVID-19. ", First published on October 12, 2021 / 11:03 PM. It has been helpful to know what resources my patients are/are not getting in advance of clinic so I can identify other options for them. AC, ML, TZ, PV, HB, CM, BC, EL, MR, DM, and PL contributed to conception and design of the study. OASAS HOPEline: New York State's 24/7 problem gambling and chemical dependency hotline. Due to the pandemic, many of these services transitioned to telerehabilitation (15). An official website of the United States government. COVID-19 business information | Business Victoria Kennedy Krieger Institute, an internationally known, non-profit organization located in the greater Baltimore/Washington, D.C. region, transforms the lives of more than 25,000 individuals a year . We are continuously monitor and respond to the changing public health environment. Comorbidities are risk factors for hospitalization and serious COVID-19 illness in children and adults with sickle cell disease. J Appl Psychol. Unbelievably, although he cautioned against panic-buying, he also suggested it was a good time to stock up before the order kicked in at 5 p.m. Tuesday. Jared Kushner in the White House's Rose Garden . Bethesda, MD 20894, Web Policies And doctors at the clinic have seen more cases of "long COVID" as many have started going back to school. (2020) 29:100630. doi: 10.1016/j.eclinm.2020.100630, 15. You can reach the following number from all cities of West Bengal such as Kolkata, Siliguri, Asansol, among others. ; National Coronavirus (COVID19) Health Information Line - 1800 020 080 (this number operates 24/7 - if you require translating or interpreting services, call 13 14 50). Over 4,000 patients (Figure1) were seen across these programs, during the time of data collection (May 2020 through December 2020). Methods: A Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. There was a 0.998 cumulative decrease in reports of worsening behavior with each increase in age by month (Table2). To speak to a registered nurse, call Healthdirect on 1800 022 222 (24 hours a day, 7 days a week).. COVID Care@Home program. The Neurology clinic sees patients diagnosed with brain injury, leukodystrophies, Rett syndrome, stroke and epilepsy. A case-control study: results from two observational cohorts. 2-3 hours long, exhausting, and hard. The implementation the Pandemic Intake survey facilitated the exchange of information and ideas, to benefit both patients and providers, and can be adapted to be used as a model for future pandemics at similar institutions. Front Psychiatry. To purchase a reprint of this article, contact [emailprotected]. The COVID-Safety Venue Information provided is subject to change. Language assistance is available. doi: 10.1111/jpc.15285, 4. EClin Med. Guardians of patients from more medically complicated clinics were significantly more likely to report perceived increased risk of contracting COVID-19, and the inability to access surgeries and therapies. To assess the utility of the Pandemic Intake questionnaire, a provider feedback survey was developed and sent to the seven program directors. A 24x7 control room has also been established for any query related . Sections. Chi-square analysis determined if responses differed between those in more or less medically complicated clinics. For accommodation requests for the MN Community Testing and Vaccination sites, call the Minnesota Department of Health COVID-19 Public Hotline at 1-833-431-2053 between 9 a.m. and 5 p.m. on Monday, Wednesday, and Friday; 9 a.m. - 7 p.m. on Tuesday and Thursday. The mean age was 9.5 years (range 021.6 years); 1,119 (68.1%) were males and 524 (31.9%) were female. (2021) 11(9):1139. doi: 10.3390/brainsci11091139, Keywords: pandemic (COVID-19), pediatrics - children, rehabilitation, SARS CoV 2, neurodevelomental disorders, Citation: Vedmurthy P, Murray C, Chen B, Asiedu A, Baranano K, Bay M, Belcher H, Burton V, Conlon C, Fine A, Gill R, Harris J, Hart K, Inches S, Johnson J, Lance E, Lipkin PH, Menon DU, McIntyre T, Rajaprakash M, Recio A, Singer HS, Smegal L, Smith-Hicks CL, Vernon H, Wilms Floet AM, Wong J, Yelin K, Leppert MLO, Zabel TA and Comi AM (2022) Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic. Kennedy Krieger has one of the only clinics in the country that treats children and young adults dealing with what's known as "long COVID," when some suffer from symptoms long after the initial infection. Add an answer. Necessary cookies are absolutely essential for the website to function properly. Herman C, Mayer K, Sarwal A. Scoping review of prevalence of neurologic comorbidities in patients hospitalized for COVID-19. Brain Sci. Masi A, Mendoza Diaz A, Tully L, Azim SI, Woolfenden S, Efron D, et al. Uttar Pradesh. Robert F. Kennedy Jr. has risen to become a major figure in the vaccine resistance movement. The .gov means its official. Kennedy Krieger Careers and Employment | Indeed.com (2020) 10(4):182. doi: 10.3390/jpm10040182, 11. Race and age were significant predictors; sex and clinic type were not. Get fully vaccinated between December 15, 2021, and March 31, 2022. CARD, CDL and the Tourette's clinic were noted as less medically complicated. Rehabilit. By: Daily Record Staff May 5, 2021. In a survey of medical providers, five out of six program directors who received the responses to this survey found this questionnaire helpful in caring for their patients. Guardians of patients seen at the SWS center (9%) were 2.4 times more likely to report worsened appetite then CDL patients (5%). Federal government websites often end in .gov or .mil. It is designed for people with disabilities who are 12 years of age and older, as well as their families and caregivers. In St. Louis,45 percent of children with disabilitieshave notreturnedto in-person instructionat the countys special education schools. As a library, NLM provides access to scientific literature. Coronavirus (COVID-19): guidance and support - GOV.UK Contact Us. Guardians of patients from more medically complicated clinics were significantly more likely to report perceived increased risk of contracting COVID-19, and the inability to access surgeries and therapies. The COVID Care@Home team includes nurses who are available to provide advice on symptom management, and assist patients with engagement . Murphy A, Pinkerton LM, Bruckner E, Risser HJ. A recent report found that most COVID-19 disinformation online is spread by just 12 people and one of them is the nephew of former President John F. Kennedy.. Robert F Kennedy Jr. cemented . This approach, and Pandemic Intake Questionnaire, may prove useful as the COVID-19 pandemic situation evolves, and for future pandemics, both at the Kennedy Krieger Institute and at other similar medical facilities. Help job seekers learn about the company by being objective and to the point. Live agents are available: Monday - Friday 8am to 5pm EST If you have an urgent medical need, please reach out to your healthcare provider. No use, distribution or reproduction is permitted which does not comply with these terms. A significant main effect for time (early vs. later pandemic) was only observed in the ability to access surgeries over time (p=0.027); more respondents reported difficulty accessing surgeries between May and August (39.4%) than between September and December (13.6%). Impact of COVID-19 pandemic on mental health in the general population: a systematic review. Regarding sleep, 11.7% (n=191) indicated the child's sleep worsened during the pandemic (Table3). They were analyzed within Excel to determine the frequency of answers. 18001805145. Neurology. Reports of worsening in behavior during the pandemic was significantly different across race and ethnicity (p=0.002), type of clinic (p=0.014), and across age (p=0.047). Evolving healthcare delivery in neurology during the coronavirus disease 2019 (COVID-19) pandemic. *denotes statistical significance in table3. Supporting NSW during COVID-19 | Service NSW 4 Central Florida Heart Care, Maitland, FL, United States. Race, age, and clinic type were significant predictors, but not sex. Providers addressed this concern by making referrals to other clinics. The virus can cause mild to serious illness, and even death. 12. On the bright side, Tuesday was her birthday and she had a rich array of celebratory alternatives. All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. This toolkit aims to help health departments prevent the spread of COVID-19 at multi-day events that are expected to draw large numbers of people. The Kennedy Krieger Institute approaches neurodevelopmental disorders through a multi-professional treatment lens, allowing for expansive integration of changes and improvements in the quality of care. Clinic type, age and race were significant predictors; sex was not. This de-identified database was stored on a secure Institute shared drive, and analyzed within IBM SPSS 27. / CBS Baltimore. Please note: The call center cannot access COVID-19 testing results. How 111 online works. A provider feedback survey was distributed to program directors to assess the effectiveness of this intervention. This work was supported by funding provided by the Orokawa Foundation. Prvu Bettger J, Resnik LJ. 111 online will not give you a diagnosis, but we will direct you to the best place to get help for your symptoms. Helps to reduce your risk of developing coronavirus and makes your symptoms milder if you do Coronavirus (COVID-19): Treatments How to access coronavirus treatments if you're at highest risk Coronavirus (COVID-19): Longer-term effects (long COVID) Learn about the symptoms of long COVID and how you can manage them kennedy krieger institute (baltimore, md) This page shows COVID-19 capacity for hospitals in Anne Arundel County, Baltimore County and Baltimore city in Maryland The colored icons on the map below indicate the hospital's bed occupancy, but do not represent local hospitals surge plans to accommodate more patients. Fifteen percent seen in the Center for Development and Learning reported an increased perceived risk for their children (i.e., yes or unsure); those from more medically complicated programs, i.e., Spine (59%), Other (58%), Sturge-Weber Syndrome (49%), Neurology (44%), and Neurogenetics (35%) clinics were 3.298.77 times more likely to report a perceived increased risk of contracting COVID-19 (Table2). At the same time, the pandemic has disproportionatelyaffectedindividuals with disabilities, in part becausemanyrely on daily structure and in-person support for learning and social growth. J Autism Dev Disord. Inaccessibility to services like physical, occupational, and speech therapies can result in a decline in patient health (6). One of those clinics is located in Maryland at the Kennedy Krieger Institute in east Baltimore. Questions asked guardians to identify a worsening, improvement, or no change in quality of life due to the COVID-19 pandemic. There was a 0.993 cumulative decrease in reports of difficulty accessing therapies with each increase in age by month. If you are planning an onsite or virtual conference, please contact ConferenceReservations@KennedyKrieger.org as soon as possible to start the process of requesting a new event. Six of 7 program directors responded to a survey assessing their experience utilizing the Pandemic Intake survey (Table4). Email the State of Minnesota Reach out to us with your questions, comments . (2021) 27(8):87480. Those close to him say it . But many don't about it, and that's why Kennedy Krieger is now trying to get the word out about it in schools. There was no difference in perceived increased risk of contracting COVID-19 across race, age and sex; this data contradicts previously reported information where Black and Asian individuals were at higher risk (14). Frontiers | Pandemic intake questionnaire to improve quality Twenty percent (n=327) of guardians reported worsening in their child's behavior during COVID-19 (model correctly classified 79.9% of the sample, 2 (14, N=1,637)=36.8, p=0.001). Regarding appetite, 4.98% (n=81) reported their child experienced worsened appetite. Sex, race and age were not predictors. Six of 7 program directors responded to a survey assessing their experience utilizing the Pandemic Intake survey (Table4). Regarding sleep, 11.7% (n=191) indicated the child's sleep worsened during the pandemic (Table3). Sex, race and age were not predictors. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. Share by Email. 'I Just Want To Be Back To Normal' | Maryland Teen Chloe Devore Shares Reports show higher rates of anxiety, depression, psychological distress and stress (16). Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact.MethodsA Pandemic . 3:934558. doi: 10.3389/fresc.2022.934558. VAERS is an unreliable source, and the agencies that run it say its reports . The Pandemic Intake questionnaire content was implemented beginning in April of 2020 until December 31, 2020 (Figure1), and included items specific to perceived risk of contracting COVID-19, changes in mood, behavior, sleep, appetite, and access to medical care. The clinics noted as medically more complicated include: Neurogenetics, Neurology, Spinal Cord Injury, Sturge-Weber syndrome, Epigenetics, Metabolism and the Sickle Cell clinic. Xiong J, Lipsitz O, Nasri F, Lui LMW, Gill H, Phan L, et al. A Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. Clinic type was a significant predictor; guardians of CARD patients (22%) were 2.2 times more likely to report worsening sleep compared to CDL patients (12%). Responses to the provider feedback survey (see Supplementary Appendix B for survey) were organized in an Excel database. Data from May-December 2020 were merged with demographic information of patients from 10 clinics (Center for Autism and Related Disorders (CARD), Neurology, Epigenetics, Neurogenetics, Center for Development and Learning (CDL) Sickle Cell, Spinal Cord, Sturge-Weber syndrome (SWS), Tourette's, and Metabolism). (2020) 95(2):7784. This is an open-access article distributed under the terms of the, GUID:CE3DC7E1-E533-492A-963C-FBB9BAFED580, GUID:33FE3EAD-8EC4-4500-A342-7D5CC5C325EC, pandemic (COVID-19), pediatrics - children, rehabilitation, SARS CoV 2, neurodevelomental disorders, Intellectual and developmental disability and COVID-19 case-fatality trends: triNetX analysis. Measures implemented by program directors to address COVID-19 concerns brought up in the pandemic intake questionnaire. Contact us | Victorian Government - Victoria State Government Program directors made more appointments available and provided COVID-19 education to their patients. Meetings should be conducted virtually whenever possible, especially during times of increased transmission. The COVID-19 pandemic uniquely impacted the medical care of patients with neurodevelopmental disabilities. Sci. The inability of these patients to understand complex situations presents challenges with mood and behavior (5). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. Pediatric Post COVID-19 Rehabilitation Clinic, ConferenceReservations@KennedyKrieger.org, Hospital Education Liaison Program (HELP), Maryland Center for Developmental Disabilities, Have traveled outside the U.S. in the past 21 days. the contents by NLM or the National Institutes of Health. It is designed for people with disabilities who are 12 years of age and older, as well as their families and caregivers. Analyzing 2,589 child neurology telehealth encounters necessitated by the COVID-19 pandemic. Clinic type was a significant predictor, but sex, age, and race were not (80.5% correctly classified, 2 (14, N=1,638)=158.6, p<0.001). Covid . Measures implemented by program directors to address COVID-19 concerns brought up in the pandemic intake questionnaire. This website uses cookies to improve your experience while you navigate through the website. Working at Kennedy Krieger Institute in Baltimore, MD - Indeed Guardians of patients seen at the SWS center (9%) were 2.4 times more likely to report worsened appetite then CDL patients (5%). Moynihan R, Sanders S, Michaleff ZA, Scott AM, Clark J, To EJ, et al. The Center for Development and Learning (CDL) sees patients diagnosed with cognitive impairments, anxiety, attention deficit hyperactivity disorder, learning disorders, language delays and social difficulties. A full factorial binary logistic regression (with interaction) determined whether responses differed between group (more vs. less medically complicated) and time of survey completion (early vs. later pandemic), and identified which factors drove statistical significant associations.
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